The 67-year-old was diagnosed with muscular
spinal atrophy when he was just 25 before specialists re-assessed him as having muscular dystrophy when his younger brother, Ray, was also diagnosed.
I worked with the Jennifer Trust, alongside South Birmingham College, to raise awareness of
Spinal Atrophy in kids which was very inspirational and made me look at everything in a whole new light."
And she said that specialist wheelchair bases, which are essential for children with muscular dystrophy and
spinal atrophy, are not available through ALAC services and usually have to be funded privately.