It has also been a great comfort to talk to people who have gone through what we are going through thanks to the Icthyosis
She is taking part in the Walk For Skin in Sutton Park next week to try and increase awareness not just of harlequin icthyosis
but many skin diseases, including eczema, vitiligo, psoriasis, scleroderma and skin cancer.
Other clinical cases on show were Fuchs' endothelial dystrophy, iridocorneal endothelial syndrome and a child suffering from icthyosis
who requires intense hourly, ocular lubrication day and night and who also has had a corneal graft in one eye.
Although discoloration and icthyosis
caused by clofazimine are the most common adverse effects caused by MDT, they were not taken into account as they were minor and were not a cause of the MDT stoppage in this study.
The Oldacres told their story on This Morning earlier this year and presenter Philip Schofield was so moved he volunteered tio be a patron of Netherton's sister charity, the Icthyosis
4] CMC can be limited to skin and mucosa only or it may be associated with polyendocrinopathy, thymoma and KID (Keratitis, icthyosis
, deafness) syndrome.