'But we cannot rely on subsidies forever,' says the older Sarmenta, which is why they hope that government, through the Department of Health and PhilHealth, will be able to help hemophiliacs
and their families to shoulder the lifetime burden of medicines and other treatment.
At least five hemophiliacs
died last year either because of the unavailability of medicines or lack of knowledge of medical practitioners in handling their condition.
I wish there was a minister with a hemophiliac
son so he would know what we are going through."
Without any push from the Administration, the hemophiliacs
will get only a fraction of their due.
groups have contended that the drug companies manufactured the clotting products from blood taken from drug abusers and others at high risk for AIDS and failed to heat the blood products to kill the virus.
Aside from the fact that their figures grossly underestimated the risk and were selfserving, odds of that kind are ominous for hemophiliacs
. Factor VIII is concentrated from thousands of blood donations, and a hemophiliac
may easily be exposed to a million donors of blood in a year.
"ryan was the first hemophiliac
in our area to diagnosed, and he was one of the younger ones.
The dogs, from a colony bred for more than 30 years from a hemophiliac
ancestor, are good models of human hemophilia because their disease occurs naturally and mimics that in people.
One or two vials of this product (about 30 cc.) could stop hemorrhaging in a hemophiliac
. The real plus was that it didn't need to be frozen.
The Pneumocystis victim, the doctors had said, was a hemophiliac
The Tokyo District Court ruling on March 28, 2001 found Abe not guilty of professional negligence in the 1991 death of the hemophiliac
. Prosecutors appealed his acquittal.
He was arrested in October 1996 on suspicion of causing the patient's death as well as the AIDS-related death of a hemophiliac