health activism

health activism

A stance of political advocacy and active involvement by patients and their supporters in healthcare organisations and financing agencies in furthering research and broadening funding for a particular medical condition.

Examples
AIDS, Alzheimer’s disease, breast cancer, lung cancer.
 
Pros
Health activism may result in increased research funding for the condition of interest.
 
Cons
Health activism may alienate healthcare allies (i.e., physicians, health policy makers, scientists) by advocating for unproven and cost-prohibitive therapies at the price of reduced funding for more effective programmes or basic research.
References in periodicals archive ?
"Nothing about us, without us" was a key organizing slogan of early LGBTQ health activism, (41) and it is policy-informing to hear what committed practitioners have learned by working with their transgender patients.
The essays are grouped on four thematic sections on ethics and history, environmental health, the effects of colonial violence on kinship, and indigenous knowledge and health activism. Some specific subjects addressed include indigenous health policy in urban Ontario, Native American women and post-incarceration health, preventing violence against S<AEa>mi women and children, and the BCG tuberculosis vaccine experiment on native peoples of Alaska.
Being a Bipolar disorder survivor, Ms Serame had driven herself towards mental health activism, using different platforms to raise awareness of mental health in Botswana.
An example of the global health activism experience that incorporates local agendas is the People's Health Movement (PHM), whose articulation of various groups pleads and voices out different health demands.
SHARON BATT: One of the things I realized in my research was the overlap between the women's health activism of the '70s and '80s and the ethics debates over drugs and pharma funding that took place within the breast cancer movement.
The primary goal of much visible mental health activism became "raising awareness", and it completely dominated the media: Articles, books, TV shows all firmly focused on the idea of breaking down stigma.
The Victory Community Health Centre in Nelson features in the text as a case study of community health activism. And the text weaves the health experiences of two fictional families--one Australian and one New Zealand--throughout.
(1) A review of health activism in Tamil Nadu from the 1980s onwards demonstrates how activism that explicitly made the connection between the health of the individual body and mobilising for a more just social order has had the greatest continuity and reach.
Health Activism: Foundations and Strategies Glenn Laverack
In this book, health activism is seen as a legitimate approach to the way health programs are delivered.
As Thomas notes, the role of health activism and health policy in the history of the civil rights movement has been largely overlooked by scholars.
He shows how theories of risk evolved with changes in women's roles and African-American and new immigrant migration trends, and with diagnostic advances, racial protest, and contemporary health activism. He argues that the "war on cancer" continues to be waged along the color line.
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