EDRIC (The European Dysmelia
Reference Information Centre) is an umbrella organisation that aims to bring together the world's limb difference groups to share knowledge, expertise and support in a way that will benefit and bring a strong voice to those affected by the loss of one or more limbs, whether congenital or through amputation.
DysNet has been launched to bring together the world's congenital limb difference (Dysmelia
) groups and organisations, to share information and resources on a global level.
The group, who have formed a pan-European Non-Governmental Organisation called EDRIC (European Dysmelia Reference Information Centre), chaired by Thalidomider and former BBC veteran, Geoff Adams-Spink, are making sure that the knowledge they have gained is preserved and built upon.
Geoff said, “There are many small support groups dotted around Europe and the rest of the world of people with various forms of dysmelia. We want to bring all of their knowledge together so people can find the answers they need and also contribute to the database from their own experiences.
Born with dysmelia, an abnormal congenital disorder of limbs reduction or deficiency, Briza has hands that are not fully formed with fused fingers and underdeveloped feet.
Briza is not worried if he has a child with dysmelia. He said: "I will accept it and take care of him or her.
is the clinical term for congenital limb deficiency.
EDRIC is the European Dysmelia Reference Information Centre.
Dysmelia is the medical term for congenital limb deficency of all types.
SALLY has left arm dysmelia
, meaning her left arm did not develop from below the elbow.
, a rare congenital condition, usually occurs in one in 100,000 people
EDRIC (European Dysmelia
Reference Information Centre) that runs the DysNet online Limb Difference Network, has recently launched a survey to get a better picture of what life is like for people living with limb deficiencies across Europe.