Its goals include improving quality of life for people with
bleeding disorders and improving understanding and treatment of
bleeding disorders.
The common occurrence of marriage among cousins may lead to a higher occurrence of this disease in our country.19 It is important to diagnose BSS and differentiate it from other inherited
bleeding disorders and Idiopathic Thrombocytopenic Purpura.
On this World Haemophilia Day we highlighted the need for treatment for all people with a
bleeding disorder and this can only be achieved with the help of the community at large.
"At NHF we recognize the need for people with
bleeding disorders to be educated about their condition in age-appropriate ways.
Andrea, mom of three young adults, and her youngest child, Star, both have the
bleeding disorder that killed Sofia.
The researchers also screened for iron deficiency and/or anemia and found 53 of 107 patients (49%) who were screened received a diagnosis, and 19 of 27 patients (70%) who were diagnosed with a
bleeding disorder also had iron deficiency and/or anemia.
SOL is an international partner of HPWS, which provides sponsorship, scholarship and enterprise grant opportunities for people with
bleeding disorders in developing countries.
Here are some interesting numbers about hemophilia, a genetic
bleeding disorder that prevents blood from clotting normally.
Of the given number, only a dismal 1,500 persons with
bleeding disorder have so far been registered.
In several cases, the bleeding adverse event revealed a previously undiagnosed or undisclosed
bleeding disorder. Bleeding adverse events in men with potential
bleeding disorders are serious and can be fatal.
Of 72 (1.9%) participants who responded "Yes" to "Have you ever been diagnosed with any
bleeding disorder?" question, eight reported having hemophilia, three platelets disorders, and none reported VWD; remaining participants did not disclose additional information.