I'm speaking out to raise awareness of alternating hemiplegia.
Sammy said Jack was informed his son was battling illness a couple of years ago but until last week, when she tweeted an appeal to raise money for alternating hemiplegia, BAD BOY: David in hit he was unaware of his son's exact condition.
The 1988 version included benign paroxysmal vertigo of childhood and alternating hemiplegia
in this category.
Also, the term alternating hemiplegia
was removed, and both cyclical vomiting and abdominal migraine were added to childhood periodic syndromes.
Callum's family also expressed frustration at the lack of research going into Alternating Hemiplegia
of Childhood, the one-in-amillion condition which has shattered her son's life.
Little Callum McGilligan, nine, who has the rare neurological disorder Alternating Hemiplegia
of Childhood (AHC), could barely contain his excitement.
Luke, who suffers with incurable alternating hemiplegia
which causes epilepsy and temporary paralysis, is the face of the new service that means Acorns' specialist nurses can go out to children's homes instead of offering services only at its hospices in Selly Oak, Walsall and Worcester.
Besides Katie, some of the other children who have benefited in one way or another from the CEMF's services include: Kristen Smith, who has spinal muscular atrophy and for whom the CEMF was working toward purchasing a power wheelchair; Cory and Chris Dorvil, who both have spastic diplegic cerebral palsy and use wheelchairs; Brent Wood who has aplastic anemia; Deanna Paulov who has a severe seizure disorder (the Fund has underwritten her medications, which were not covered by her insurer); and Jessica Scanniello, who has a rare disorder known as alternating hemiplegia
Now Sammy, 28, has revealed Greyson has alternating hemiplegia
- a rare condition which causes full body attacks, muscle spasms, partial paralysis and the stiffening of limbs.