Three-year-old Callum suffers from Ohtahara syndrome
- a rare epilepsy condition - and was referred to Ty Hafan in 2013.
Ivan lived with cerebral palsy and a rare and severe form of epilepsy known as Ohtahara syndrome
And the Prime Minister's first child, Ivan, was born with Ohtahara syndrome
, a rare form of cerebral palsy and epilepsy.
which is one of the severe epileptic encephalopathy pictures observed in newborns was defined in 1976 for the first time.
That's because 14-year-old Connor suffers from Ohtahara syndrome
- a very rare and extreme complication of epilepsy - which has left him disabled for life.
Connor suffers from a progressive neurological disorder called Ohtahara Syndrome
, a rare form of epilepsy.
is a rare neurological disorder of infancy, which consists of frequent generalized seizures and continuous abnormalities on electroencephalogram.
Ivan had a rare epilepsy condition accompanied by severe cerebral palsy called Ohtahara Syndrome
He was born with the rare neurological disorder Ohtahara syndrome
Only now do we understand how the family lived on a knifeedge, consumed by the 24-hour-a-day care of a child who suffered from a tragic combination of cerebral palsy, severe epilepsy and the extremely rare neurological disorder Ohtahara syndrome
Ivan, six, died 45 minutes after being rushed to London's St Mary's Hospital, Paddington, following a seizure on Wednesday He suffered from cerebral palsy and Ohtahara syndrome
, a very rare form of epilepsy which caused frequent spasms.
Ivan, who suffered from Ohtahara Syndrome
, a severe form of cerebral palsy which also involves a rare and severe epilepsy syndrome, was taken ill overnight and died yesterday, shortly after arriving at St Mary's Hospital in Paddington, London.