rare disease

(redirected from Office of Rare Diseases)
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rare disease

See Orphan disease.
References in periodicals archive ?
Groft is director of the Office of Rare Diseases of the National Institutes of Health, and has worked diligently to stimulate and coordinate research on rare diseases and to broaden access to the human biomaterials needed to support this work.
The grant is funded by the Office of Rare Diseases Research, which is part of the NIH's National Center for Advance Translational Studies, as part of the Rare Disease Research Network.
She will also coordinate work on the newly expanded Disease InfoSearch and the Collaboration, Education and Test Translation Program sponsored by the Office of Rare Diseases, NIH (cettprogram.
29 Clinical Trial Overview of Top Institutes / Government 30 National Institute of Neurological Disorders and Stroke 30 Clinical Trial Overview of National Institute of Neurological Disorders and Stroke 30 Office of Rare Diseases, National Institutes of Health 31 Clinical Trial Overview of Office of Rare Diseases, National Institutes of Health 31 S.
An hour later the secretary at the NIH's Office of Rare Diseases called to tell me I would be speaking at the Second International Conference on Trimethylaminuria.
The conference was cosponsored by the NIEHS and the NIH Office of Behavioral and Social Sciences Research and Office of Rare Diseases.
The meeting, co-sponsored by the Office of Rare Diseases and four other institutes and centers of the NIH, features many experts in the field, health care professionals and others on our support team.
Data and supporting information were collected from published sources, including the following: oUS FDA Orphan Drug Product Designation database oUS Department of Health and Human Services National Institutes of Health Office of Rare Diseases oEuropean Commission Community Register of Medicinal Products oEuropean Medicines Agency (EMA) European Public Assessment Reports (EPAR) oJapanese Ministry of Health, Labour, and Welfare (MHLW) oDisease organization Web sites oCompany publications, including annual reports, US Securities and Exchange Commission (SEC) filings, and press releases oPublished articles in scientific journals
The National Human Genome Research Institute (NHGRI) and the National Institutes of Health's Office of Rare Diseases (ORD) have launched a new information center that delivers free and immediate access to information specialists who can provide accurate, reliable information about genetic and rare diseases to patients and their families, health care professionals and biomedical researchers.
Groft, Director, Office of Rare Diseases Research (ORDR) at the National Institutes of Health.
In 1993, the Office of Rare Diseases (ORD) was formalized under the Office of the Director at the National Institutes of Health (NIH), following the recommendations of the Commission, Congress and patient advocates.
According to a 2005 report from the National Institutes of Health Office of Rare Diseases, there are 6,000-7,000 rare diseases affecting a total of 25 million Americans, with one in every 10 Americans receiving a diagnosis of a rare disease during their lifetimes.

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