members or translators hired through the School of Public Health, University of Alberta conducted foreign-language interviews.
The survey contains a thoroughly tested measure of medical home, created and refined by a group of professional organizations including the MCHB
and led by CAHMI (NCHS 2007; CAHMI 2009b).
Near the end of this grant, MCHB
asked the Institute to provide technical assistance for integrating family-centered concepts in state and national efforts to build the Emergency Medical Services for Children (EMSC) system.
This study's definition of CSHCN was developed by the MCHB
and has had use in multiple research studies.
Further support can be found in the many published resources to guide the development of educational programs and initiatives such as reports of professional surveys (Scanlon & Fibison, 1995), integrated reviews (Anderson, 1996; Kenner & Berling, 1990; Lea, Williams & Tinley, 1994; Lessick & Williams, 1994; Thomson, 1993), and program evaluations (HRSA, MCHB
In response to both the broadened mission of federal and state Title V programs during the early 1990s, and calls for a definition that focused on the consequences of chronic illness for children, the MCHB
Division of Services for Children with Special Health Needs developed the following definition to be used for planning and advocacy purposes:
Based on national reports and recommendations, MCHB
has mapped out five critical components that support families and communities in the development of children that are healthy and ready to succeed in school.
As part of this responsibility, this MCHB
site links to grant assistance, newsletters and publications, MCHB
fact sheets, and federal register notices.
Although some differences exist in the proportion of infants with VLBW receiving specialized care, the findings in this report are generally comparable to MCHB
Although the AAP and MCHB
identify the "medical home" as a priority for children with special health care needs (Cooley & McAllister, 2004), access to a medical home may be limited by a number of factors, including lack of insurance, living at or near the federal poverty level, low education attainment, poor health, living in a nontraditional family structure, and being an adolescent (Mulvihill et al.
Under a cooperative agreement between MCHB
and the National Pediatric HIV Resource Center in Newark, N.
Another of the MCHB
core outcomes is "families of CSHCN [Children with Special Health Care Needs] have adequate private and/or public insurance to pay for the services they need.