Barbara Hamilton, of Almondbury, was at the march with five-year-old daughter Ella, who was born with Downs syndrome and an intestinal condition, Hirschprung's disease
Doctors there discovered she was suffering from sleep-associated hyperventilation, also known as Ondine's curse, a condition in which breathing stops during sleep and Hirschprung's disease
, a condition affecting the nerves which supply the lower bowel.
Bethany was born with the rare disorder Hirschprung's Disease
, which meant she had to be fed intravenously and needed a new bowel and liver.
The brave toddler was diagnosed with the debilitating Hirschprung's disease
only hours after she was born.