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Months after Gabriel's death, a chance encounter with a nurse who cares for babies with HLHS reaffirms Kuebelbeck's choice to provide comfort care--and it is made more poignant by the fact that the nurse had dreamed about a boy named Gabriel the previous night.
That's why I want to encourage other parents of HLHS children or sufferers themselves to come forward and share their experiences.
4) For a discussion of the difficulties parents face in making treatment decisions for infants with HLHS, see John J.
The recent significant decrease in the birth of babies with HLHS is an example for this situation (14).
The care of these children with HLHS has been continuously improving since the first surgical procedure became available three decades ago, yet cardiac transplantation continues to be the limiting factor for far too many individuals," said Timothy Nelson, MD, PhD, director of the Todd and Karen Wanek Family Program for HLHS in Mayo's Center for Regenerative Medicine.
The majority of cases of HLHS are detected during pregnancy and the condition can be seen on a scan of the foetal heart from about 16 weeks.
This "staged left ventricle recruitment" (SLVR) strategy uses the existing standard single-ventricle treatment for HLHS and additional procedures to spur the body's capacity for healing and growth and encourage the small left ventricle in these children to grow and function.
Babies with HLHS are born with a poorly-formed ventricle - or pumping chamber - on the left side of the heart, along with other major defects.
Just days after his birth, Anthony was diagnosed with HLHS.
He was treated at Leeds General Infirmary, where he had his first operation aged only six-days-old and is the only child with HLHS out of 50 treated at the hospital to have survived.
The HLHS GAP Thrust Washer program provides both a template and benchmark for future component program success and opens opportunities for continued metal replacement in powertrain applications," said Brian Baleno, global automotive business manager for Solvay Specialty Polymers.
Carol Kitson, chief executive officer at Abbey Multi Academy Trust, has been appointed by HLHS governors to take on the role of interim executive headteacher.
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- HLH (Hemophagocytic lymphohistiocytosis)