Charcot


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Char·cot

(shahr'kō),

Patient discussion about Charcot

Q. Does anyone suffer with Charcot disease of bilateal feet? Any suggestions you may have w/ treatment? Thanks! I was diagnosed with Charcot about 2 years ago but did not believe I had same at that time. After going thru many medical issues with my husband and myself, this was put on the back burner, so to speak, until other items could be addressed. I am mostly confined to a wheelchair now and find it best off, for now, to wear those "Croc RX" shoes (maybe around $40) and also inserts inside the Croc shoes. Initially I was just buying the inserts, but as the bones collapsed further, with the bone on the right foot actually coming through the bottom of the right foot, I had some made which were made of a more soft, pliable material. Luckily for me, I have access to a person who makes them or else I would not be able to afford them; they are so expensive and often times not worth your money. Do not let people talk you into buying inserts until you talk with others or else you will be, like I was initially, just out hundreds of dollars. I did find a few websites whereby I was able to order shoes with larger toe room and heel room to accommodate the inserts better, another issue you have to think of. YOu just cannot stick inserts into shoes like you used to wear, it will no longer work that way. I would love to share any helpful hints, suggestions, and also hear from others. AS a medical transcriptionist for many years, I HAD typed the term before, just was not familiar with the ravages it can cause and the misunderstanding of friends and family members. Also, I have these grandchildren whom I would die for and my one wish in the whole world is to take them to Disneyland and just watch them for a day HAVE FUN! I have an older electric scooter but cannot yet bring myself to use it inside the house...our home is not that large anyway and certainly -- as I have found out the hard way! -- NOT HANDICAPPED FRIENDLY! I have not driven a car since Oct of 07 and I worked for nearly 18 years or so at a hospital in Apple Valley, California, and I miss working so much. If it were not for my sense of humor, my drive, my being a military wife (husband retired U.S. Army), my good friends and good family and, this part SHOULD have gone first!, my faith in God and in Jesus Christ, I do not know how I would have reached this point. I know EVERYONE is having problems...even the billionaires (and yes, I can feel sorry for them too). We are ALL in this together and to just love one another and help one another should be EVERYONE's top goal. I am certainly no saint here...still love to joke around and if it were not for the pain meds, I might even have a beer once in a while, but I want to do what is right and I want my legs back! I am also interested to know if anyone knows anything at all regarding stem cell research...I heard in N. California they are beginning some type of stem cell research plan for spinal cord injuries on human volunteers - ones I believe who have perhaps lost the use of their legs - so I would be greatly interested in knowing more about this aspect as well. Thanks for reading this and thanks in advance for any and all information, websites, names of other individuals, anything in order to help educate myself, and others, regarding Charcot disease. God bless all of you reading this and may all your own aches and pains be small ones! Blessings your way always - Barbara

A. wow...BARBS- your story is harsh...and (not from my own experience) i know that it's a not an easy illness, it's more or less just like MS. although i do not have CMT i thank you for the great offer to help and share tips, it's wonderful to know there are people like you out there that are willing to share experience!
what i do know is that there's the "Charcot-Marie-Tooth Association" which have a very good site with the latest news and even a big database project that you may participate and help find a cure to that horrible disease.

thanks so much!!

http://www.charcot-marie-tooth.org/index.php

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References in periodicals archive ?
(37) Charcot, Lectures on the Diseases of the Nervous System, Vol.
One technique that Charcot pioneered was hypnotism.
But he had a formidable opponent in Pierre Janet, whose reputation this book does much to restore; his association with the Salpetriere 'after Charcot's star had posthumously faded' did nothing to help that reputation.
Pain is a protective mechanism, and when neuropathy prevents pain, the result can be disastrous." He warns that Charcot joints can produce massive and permanent deformity in some diabetics virtually overnight.
An example from Charcot's numerous lectures on hypnosis clarifies the relationship of this phenomenon to the sculpted remains that preoccupy L'Eve future's male protagonist, Lord Ewald.
In vivo CCM revealed significant changes in SNP morphology between the two groups (mean reconstructed SNP area: control 0.25 [+ or -] 0.06 [mm.sup.2] (range 0.16-0.37), Charcot 0.19 [+ or -] 0.05 [mm.sup.2] (range 0.13-0.28)).
The pathogenesis of Charcot neuroarthropathy has been attributed to multiple mechanisms, including an exaggerated overuse injury of an insensate joint subjected to microtrauma (7); the patient's abnormal sensorium prevents him or her from adopting normal protective behavior.
But I cannot as I have an air boot on my right foot for the Charcot. It's like having a heavy weight on your foot.
The precise pathological mechanisms underlying Charcot foot are still not fully understood.
The term Charcot hip joint refers to a rapid and progressively destructive arthropathy resulting from various neurological conditions.
In his signal 1982 study of the Parisian asylum Salpetriere, where in the late nineteenth century a women's clinic headed by neurologist Jean-Martin Charcot treated female patients thought to be suffering from hysteria, philosopher Georges Didi-Huberman argues that the photographic tableaux authorized by Charcot, in which hysterics enacted their particular ailments, were not just of interest as disturbing curios but in fact helped lay the groundwork for the then nascent field of psychoanalysis.