The new funding award will support PI CONNECT's continuing efforts to give researchers valuable insight into the patient experience by joining the information patients enter into their IDF ePHR
, the online personal health record for patients with primary immunodeficiency (PI), with the United States Immunodeficiency Network (USIDNET) patient-consented registry, which contains clinical data on several thousand patients with PI.
will enable Plunket's frontline staff to record client information digitally, through an app on a mobile tablet, while they are in families' homes.
Since 2004, EMC employees and family members over the age of 18 have had access to their ePHR
, which is auto populated (via data warehouse hosted by Optum).
As a PCORI grant recipient, IDF created PI CONNECT, the IDF Patient-Powered Research Network, bringing together patient data from IDF ePHR
with clinical data from the United States Immunodeficiency Network (USIDNET) patient-consented registry, which is a program of IDF and is funded in part by the National Institute of Allergy and Infectious Diseases (NIAID) and the National Institutes of Health (NIH).
allows individuals and caregivers living with PI to track important health information, including medications, diagnoses, symptoms, infections, and other critical data.
PI CONNECT merges the information entered by patients into IDF ePHR
, the electronic personal health record for patients with PI, with the USIDNET patient-consented registry, which contains clinical data on several thousand patients with PI.
This teleconference is a great opportunity for us to discuss our recent developments with our shareholders and inform them about our goals for our MedFlash, EPHR
device for the next three quarters," said Ronn Schuman, Connectyx President and CEO.
is pleased to announce its decision to offer discount dental plans to its MedFlash ePHR
members as part of a recent collaboration with DentalPlans.
Strong security is a requirement for meeting EPHR
privacy mandates like HIPAA (Health Insurance Portability & Accountability Act), but also for fraud prevention.
, MedFlash will contain all of this vital information and communicate it with law enforcement instantly and timing in these situations is crucial," stated Ronn Schuman, Connectyx President and CEO.
Accessible via CDs distributed to all attendees, the EPHR
allows healthcare consumers to record information related to demographics, conditions, medications, allergies, medical devices, emergency contacts, and insurance information.
The core of our ePHR
is our secure database server where everything is stored, catalogued and retrieved.