Patient discussion about narcolepsy

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Q. How do you wake up in the morning if your narcolepsy is so severe you can't hear the alarm clock, phone ring?

biggest problem is sleep paralysis, can't wake up. Late for work, everything, life is suffering because of severity. Have tried ritalin, natural supplements, hypnosis therapy, Provigal, antidepressants, nothing seems to work. Employer thinks it's an excuse, friends are irritated, I'm at my wits end. Life is spent sleeping more than awake.
A1Narcolepsy cannot yet be cured. But EDS and cataplexy, the most disabling symptoms of the disorder, can be controlled in most patients with drug treatment. Often the treatment regimen is modified as symptoms change. For decades, doctors have used central nervous system stimulants-amphetamines such as methylphenidate, dextroamphetamine, methamphetamine, and pemoline-to alleviate EDS and reduce the incidence of sleep attacks. For most patients these medications are generally quite effective at reducing daytime drowsiness and improving levels of alertness. However, they are associated with a wide array of undesirable side effects so their use must be carefully monitored. Common side effects include irritability and nervousness, shakiness, disturbances in heart rhythm, stomach upset, nighttime sleep disruption, and anorexia. For full article: http://www.ninds.nih.gov/disorders/narcolepsy/detail_narcolepsy.htm#120393201 Hope this helps.
A2was it diagnosed as narcolepsy? if so- there is little know on that disease yet (although there are a lot of research going on). and i also know that the drugs offered right now doesn't treat the paralysis before waking. i think explaining your boss about the situation, showing him a Dr. note can be a great start. may be find a job that you can do independently, like "do this until monday" and then it doesn't matter if you stop in the middle of the day for 2 hours or coming late to work. as long as you do yourjob as required.
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