Patient discussion about CRPS
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Q. Anyone have/hear of RSD (Reflex Sympathetic Dystrophy) CRPS etc ,I have Fibro too
Reflex Synmpathetic Dystrophy or CRPS and I have Fibromyalgia any others with CNS problems
|A1||Ok I would like to ask if any others with RSD would like to get to know each other it looks like they have groups ,no one without RSD can appreciate the pain and the way those who you love the most ,think you are a faker because some RSDers ,you can't see anything readily ,not being believed with Nerve pain thayt is worse than anything I have felt like being shot ,blown up ,Third Degree Burns well kinda like when the nerves stgart to grow back from Third degree burns but 24/7 and the same degree of p[ain since 1968 .IF RSD IS CAUGHT IN THE FIIRST YEAR IT CAN BE Reversed so yes I want knowledge (oops didnt mean caps(to yell)Thank You rsdno|
|A2||Personally I don't have it, but I've met several people who do. What is exactly you'd like to ask?|
RSD (or its new name, complex regional pain syndrome) it's a syndrome in which the nervous system reacts in a wrong way to some kind of event, either obvious (such as injury to a limb) or obscure (like a general disease not specific to the painful are). This wrong reaction leads to chronic pain sensation along with apparent changes in the skin (such as changes in it's color, sweating, temperature etc.)
It may be treated with supporting measures and drugs when necessary.
You may read more about it here: http://www.nlm.nih.gov/medlineplus/complexregionalpainsyndrome.html
Q. I have an injury called CRPS (Complex Regional Pain Syndrome) I desparately need help. Had 4 surgeries-no help
The pain is excruciating every second, in my left hand and arm,with no relief. I don't know where to go next or what to pursue. I've tried every pain med there is and steroidal injections and nerve stimulator implant in back, but nothing has worked. Can't believe the pain- keeps me up at night and is a killer every other second of the day. Can anyone help??? Any suggestions I may not have tried??? I am desparate for some relief. Thanks Joe
|A||It really sounds like you are suffering a great deal. Have you seen a pain specialist? Have you ever tried any kinds of stronger pain medications such as narcotics? I am only suggesting them as your last option to handle pain because no one should suffer this high amount of pain. You should discuss this with you primary care physician. I would also suggest talking to someone about your level of stress, because all this pain can cause you anxiety and you may find it helpful to talk to a psychologist or psychiatrist, see if they can help with that. I don't have any suggestions about the neurological problem because it sounds like you have tried everything there is to offer.|
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