In 1992, the mission was expanded to also support and serve individuals with capillary vascular birthmarks, Klippel Trenaunay
(KT), and Port Wine Birthmarks.
The now 40-year-old coach at the University of Oregon, who did come through qualifying, suffers from a birth defect in his right leg known as Klippel Trenaunay
Staff at the company's Birmingham centre, in Newtown Row, organised a raffle for seven-year-old Jessica Shakeshaft, who was born with a rare disease, Klippel Trenaunay
Martin has the rare and incurable Klippel Trenaunay
Weber Syndrome, which causes chronic leg pain and is being allowed to use a buggy until his court case has been heard.
To donate directly to the Jessica- Klippel Trenaunay
Syndrome charity, quote sort code 309906 and account number 0735006.
Jessica Shakeshaft, who suffers from Klippel- Trenaunay
syndrome, has already undergone 32 operations to tackle the rare circulatory disorder which can cause disfigurement of limbs.
If he can't hitch a lift his career is over because of his incurable Klippel Trenaunay
Dawn Shakeshaft, from Kingstanding, was delighted when 12 friends decided to go through the pain barrier to raise cash for her six-year-old daughter, Jessica, who suffers from Klippel Trenaunay
Princeton, NJ 08540 (609) 452-0606, (609) 520-7990 (fax) 2; Extensive lending library of academic textbooks on audiocassette (all levels) DYSOSTOSIS, ACROFACIAL, NAGER TYPE See: Nager & Miller Syndromes DYSOSTOSIS, MANDIBULOFACIAL See: Nager & Miller Syndromes; Treacher Collins Syndrome DYSOSTOSIS, METAPHYSEAL, TYPE B IV See: Shwachman Syndrome DYSOSTOSIS, POSTAXIAL ACROFACIAL See: Nager & Miller Syndromes DYSPLASTIC ANGIECTASIA, CONGENITAL See: Klippel - Trenaunay
Syndrome DYSTONIA Dystonia Medical Research Foundation One E.
com 1,2,3,5,6,9; French materials ANGIO-OSTEOHYPERTROPHY SYNDROME See: Klippel- Trenaunay
Syndrome ANGIOKERATOMA CORPORIS DIFFUSUM See: Fabry Disease ANGIOMA See: Vascular Malformations ANGIOMATOSIS RETINA See: Von Hippel-Lindau Syndrome ANIRIDIA See: Visual Impairments ANKYLOSING SPONDYLITIS, JUVENILE See: Arthritis ANOPHTHALMIA See also: Visual Impairments International Children's Anophthalmia Network 5501 Old York Rd.
Long venous anomalies due to Klippel Trenaunay
Syndrome were amenable to the new laser treatment.
edu 1,2,3,6 KLIPPEL-TRENAUNAY
-WEBER SYNDROME See: Klippel- Trenaunay
Syndrome KRABBE DISEASE See: Leukodystrophy, Tay-Sachs Disease KUFS DISEASE See: Batten Disease; Tay-Sachs Disease KUGELBERG-WELANDER DISEASE See: Spinal Muscular Atrophy KUSSMAUL-LANDRY PARAYLSIS See: Guillain-Barre Syndrome KYPHOSIS See: Scoliosis LACTATE DEHYDROGENASE DEFICIENCY See: Muscular Dystrophy LACTIC ACIDOSIS See also: Glutaric Aciduria, Type I; Leigh Disease; Metabolic Disorders Lactic Acidosis Support Group 1620 Mable Ave.