The girl he was talking about was 13-year-old Makenna Schwab who was born with Larsen's Syndrome
, a rare connective tissue disorder.
Northumberland youngster Dylan Marshall suffers from a rare genetic condition, Larsen's Syndrome, and was giveMichael Brown n just a 15% chance of surviving and not being paralysed or on a ventilator for the rest of his life.
Larsen's syndrome causes dislocations of bones - in the youngster's case in his spine.
As previously reported in the Chronicle, Dylan Marshall suffers from a rare genetic condition, Larsen's Syndrome
, but hopes to bounce back from his latest lifesaving surgery in the most spectacular fashion.
Since birth, Hines has been battling Larsen's syndrome, a disease that dislocates the joints and has caused curvature of the spine.
Living with Larsen's syndrome means that there can be flare-ups of issues that have to be dealt with, Hines said.
The association of a hearing deficit with Larsen's syndrome
Rachel, a journalism student, has Larsen's syndrome
, a rare disease which affects less than 40 people in Europe.
Dylan was born with Larsen's syndrome
, which causes dislocations of bones - in the youngster's case in his spine.
To rectify Dylan's condition, known as Larsen's syndrome
, doctors performed a nine-hour operation replacing his four damaged vertebrae with one of his left-side lower ribs.