He hoped the treatment could correct a defect in his DNA that caused Hunter's syndrome.
Hunter's syndrome is a rare disease in which people are born without the genetic instructions for an enzyme that breaks down long sugary molecules called mucopolysaccharides.
Patients with Hunter's syndrome need regular enzyme replacement therapy to break down the mucopolysaccharides.
Andrew Wragg, 36, facing trial for murdering his 10-year-old son Jacob, who suffered with Hunter's syndrome
, was released at Lewes Crown Court.
Over the past few years, the superfan, married name Bertram, has been tirelessly fundraising for her grandson Daniel Muers, who suffers from the degenerative disease Hunter's Syndrome.
Hunter's Syndrome causes cells in the body to be constantly damaged to the point where the body becomes completely crippled.
The 36-year-old is charged with murdering his eldest son Jacob, 10, left, who had fatal Hunter's Syndrome
Until three years ago Colin was able to live independently, despite suffering from Hunter's syndrome
, an enzyme deficiency which has left him with a weak heart, stunted growth, stiff joints and partial deafness.
Conditions involved include one form of muscular dystrophy, haemophilia, Hunter's Syndrome
Up until three years ago, Colin was able to live independently despite suffering from Hunter's Syndrome
, an enzyme deficiency which has left him with a weak heart, stunted growth, stiff joints and partially deaf.